Knowledge Hub

This article examines the essential foundations necessary for the UK’s new government to succeed in establishing a national patient record. The writers Chris Fleming and Matt Stibbs suggest that regardless of the technology approach, aligning incentives, funding data standards, and having a coherent strategy with a transparent roadmap are crucial.

How do you transform data from a burden into an asset that supports collaboration and innovation? Monica Jones, Chief Data Officer for the University of Leeds, shares her tested strategies for aligning data with organisational goals, building a positive data culture, and delivering measurable benefits.

In his TED Talk Let Patients Help!, Dave deBronkart, known as e-Patient Dave, shares his journey as a cancer survivor and advocate for patient empowerment. DeBronkart argues that patients should be active partners in their care, not just recipients, to achieve better outcomes.

The Linux Foundation’s health data report highlights the critical role of open technologies in overcoming chronic healthcare challenges. It underscores the need for seamless data exchange, data portability, and patient-centric solutions, while highlighting the importance of collaboration between different stakeholders to speed up innovation and ensure fairness.

This paper looks at the challenges and opportunities in open data standards, proposing a framework to address health data needs. It categorises the data into three domains – clinical, administrative, and research and population data – proposing domain-specific design principles that will improve interoperability.

The Tony Blair Institute’s report, A New National Purpose: Harnessing Data for Health, advocates for open, interoperable health data systems, closely aligning with openEHR principles. The report calls for breaking down data silos, adopting standardised formats, and enabling anonymised data sharing for research and innovation while giving patients more control over their health information.

This paper examines the joint roles of OpenEHR and HL7 FHIR in healthcare IT, showing how combining their distinct strengths can create a powerful solution that balances precision with connectivity, redefining how healthcare data is managed and shared.